Date of Last Revision: 9/14/2022
This page describes our policy regarding processing the personal data of users (“Users” or “you”) that visit us.
This information is provided to any user of the web-based services that are made available by Therapeutics, Inc. (“Therapeutics”, “we” or “us”) via electronic networks as from the following address: www.nethertonsyndromeclinicaltrials.com which corresponds to the home page of our web site (“Site”). The information provided only applies to our Site and does not concern any web sites that may be visited by users via external links.
Visiting the Site may result into the processing of data concerning identified or identifiable persons.
The data controller is Therapeutics, Inc., with registered office in 9025 Balboa Avenue, Suite 100, San Diego, CA 92123.
Place Where Data Is Processed
The processing operations related to the web-based services that are made available via this Site are carried out at the aforementioned office of Therapeutics Inc. exclusively by technical staff in charge of said processing, or else by persons tasked with such maintenance activities as may be necessary from time to time.
What Personal Data We Collect
We may collect your Personal Data in the following ways:
(a) Optional Data.
We collect Personal Data you choose to provide, e.g., through registrations, applications and surveys, and in connection with your inquiries. For example, you may choose to provide your name, contact information, health, insurance and/or financial information in connection with a patient assistance or support program or a clinical trial.
(b) Navigation Data.
In addition, we may gather Personal Data automatically through your use of the Site, e.g. your IP address and how you navigate our Site. In this regard, see also the section below Cookies.
How We Use Your Personal Data
We may use your Personal Data in the following ways:
(a) To serve you.
We may use your Personal Data to respond to your inquiries and provide the services you may request. In addition, we may use Personal Data to identify and track when you arrive at the Site via an external link, e.g., such as a link appearing on a third party site or in an email Therapeutics has presented to you. We will also use your information to provide customer service and support.
(b) To validate your ability to access / use certain services and information.
Some services and information we offer may only be suitable for/accessible to individuals meeting certain eligibility or other criteria. In such cases, we may verify that you meet such criteria.
(c) To provide you the opportunity to participate in surveys.
We may provide you the opportunity to participate in surveys on the Site. If you participate, we will request certain Personal Data from you. Participation in these surveys is completely voluntary and you are free or not to disclose this information. Failure to provide such data may entail the failure to be provided with the items requested. We may use a third-party provider to conduct these surveys. In that case, the third party will be prohibited from using your Personal Data for any other purpose. We will not share the Personal Data you provide through a survey with other third parties unless we give you prior notice and a choice as to whether you want that information disclosed.
(d) To improve products and services and protect patients and consumers.
We use the information you provide to better understand how our products and services impact you and those you care for, to track and respond to safety concerns and to further develop and improve our products and services. For example, you may be invited to participate in a survey or in a clinical trial.
How We Share Your Personal Data
Therapeutics may share your Personal Data as follows:
(a) In connection with business transfers.
(b) To comply with law.
We reserve the right to disclose your Personal Data as required by law, when we believe disclosure is necessary to comply with a regulatory requirement, judicial proceeding, court order, or legal process served on us, or to protect the safety, rights, or property of our customers, the public or Therapeutics.
Our Site uses “cookies”. A cookie is a small file of letters and numbers that we place on your computer or mobile device if you agree. These cookies allow us to distinguish you from other users of our website, which helps us to provide you with a good experience when you browse our website and also allow us to improve our website.
Personal Data is processed with automated means for no longer than is necessary to achieve the purposes for which it has been collected. Specific security measures are implemented to prevent the data from being lost, used unlawfully and/or inappropriately, and accessed without authorization.
Data Subjects’ Rights
Data subjects are entitled at any time to obtain confirmation of the existence of personal data concerning them and be informed of their contents and origin, verify their accuracy, or else request that such data be supplemented, updated or rectified.
Data subjects are also entitled to request erasure, anonymization or blocking of any data that is processed in breach of the law as well as to object in all cases, on legitimate grounds, to processing of the data.
All requests should be emailed to email@example.com, or sent to Therapeutics’ Office (9025 Balboa Avenue, Suite 100, San Diego, CA 92123).
Any queries or concerns about privacy on this Site should be sent by email to: firstname.lastname@example.org, or sent to the Therapeutics’ office (9025 Balboa Avenue, Suite 100, San Diego, CA 92123).